Family

Intensive care

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Our world has been turned upside down again. On Saturday night, I took my husband into A&E because I was worried he’d become a bit confused and was saying some pretty random stuff. He’d been feeling poorly for about a week but nothing as out of the ordinary as this. In the few hours that we waited to see a doctor, he deteriorated so much that he was unable to answer basic questions and became extremely drowsy. A night of waiting for tests followed and by Sunday morning he was moved to the intensive care unit and put on strong intravenous antibiotics.

They suspected encephalitis, a viral infection that affects the brain. Since then, this has pretty much been ruled out but the reason it’s all happening still isn’t known. He’s had so many tests and the results keep coming back clear – all until yesterday, when an MRI scan showed something on his brain which they suspect might have something to do with a mineral deficiency. Hopefully we will know more when he’s been assessed by neurologists later today, but until then, I’m left waiting and wondering what it is and how it can be treated. I’m not sure what to feel, think or expect, and I’m just feeling really, really scared.

Thankfully I’ve got my family around me and my children don’t really know what’s going on, because one is too young and the other is enjoying spending extra time with his grandparents and hasn’t yet realised how poorly his father is. He must have asked me three times where his dad is, but fortunately keeps forgetting when I say in hospital. It’s not new to him you see, as we’ve been here before. Many of you will know that 18 months ago Roger was admitted to intensive care in an emergency and spent the following eight months in hospital being treated for blood clots, a bowel resection and liver problems. So sadly intensive care isn’t a new environment for us, but at least I’m less shell-shocked by all the machines and the bleeps, and the anxiety and the sadness that comes with it. Another plus – if there can be such a thing – is that many of the nurses remember us from last time, and know exactly what we must be going through this time around.

I’m hoping and praying I have some positive news soon. It breaks my heart to think the situation might turn out anything other than good. We’ve been here before and we got through it. Turns out my husband is a fighter. So come on Rog, fight! We all love you so much x x x x

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26 Comments

  • Reply
    Clare
    January 13, 2015 at 11:04 am

    Sending so much love and light your way Jules. You’re right, he IS a fighter. We are all willing a speedy recovery xxxxxx

  • Reply
    Megan - Truly Madly Kids
    January 13, 2015 at 11:07 am

    Absolutely fight Rog! You will be in my thoughts – lots of love xxxxx
    Megan – Truly Madly Kids recently posted…I’m Facing Fifty and I don’t Want To!My Profile

  • Reply
    Lindsay @Newcastle Family Life
    January 13, 2015 at 12:04 pm

    Oh I really do hope he gets better soon. I have been in intensive care once before with my mum and it’s not a nice place at all. Fingers crossed they find out what is wrong. Thoughts and prays are with you at such a difficult time.
    Lindsay @Newcastle Family Life recently posted…Attipas Toddler Shoes Review And GiveawayMy Profile

  • Reply
    Paul Cockerton
    January 13, 2015 at 12:09 pm

    Can’t think of what to say other than to wish you all the best. Sounds like you’re doing an amazing job keeping it all together. Best wishes to you all.

  • Reply
    Mini Travellers
    January 13, 2015 at 12:09 pm

    Oh lovely, fight fight fight Roger. Sending lots and lots of love your way. xxx
    Mini Travellers recently posted…Swimming in Splash About Float JacketsMy Profile

  • Reply
    Mrs H
    January 13, 2015 at 12:31 pm

    My darling, Julia. I really wish you weren’t going through all this again. My thoughts are with your family at the moment. Rog – you better fight for your gorgeous wife and children. We love you. We hope to hear that Rog is back at home where he belongs soon. Hugs Lucy xxx
    Mrs H recently posted…Sunday Stars – 11/01/2015My Profile

  • Reply
    mummyofboygirltwins
    January 13, 2015 at 12:34 pm

    Really am so sorry you’re going through all this again 🙁 Your poor family has been through enough. I really am hoping for good news and thinking of you every day. You need anything at all and you just let us know. Big hugs – Jess x x x
    mummyofboygirltwins recently posted…My toddlers have me wrapped around their little fingers!My Profile

  • Reply
    Kat | Beau Twins
    January 13, 2015 at 12:41 pm

    Come on Rog, you have to pull through. You have an amazing wife and wonderful children. Sending you so much love and strength Julia. Xxxxx
    Kat | Beau Twins recently posted…Bedroom/Playroom Ideas For Toddler GirlsMy Profile

  • Reply
    Deb Troops
    January 13, 2015 at 1:03 pm

    Jules I’m with you love. Can I offer a suggestion there are several conditions that can cause these symptoms and they’re all to do with the Endocrine system IE Pituitary and Hypothalmus usually affected by brain injury but can relate to infections of organs in the body that filter waste eg Liver and Kidneys. I only know because Josh has huge problems as a result of his brain injury and now he’s on steroids things are going well. Roger is a fighter you will get through this and if there’s anything at all I can help you with please don’t hesitate to ask. Claire has my number. Love and prayers x

  • Reply
    Hayley @hayleyfromhome
    January 13, 2015 at 1:04 pm

    Oh Julia it makes me so sad to think of you going for all this again! You are so strong and I know Rog will keep on fighting too, I hope you get some answers soon. Thinking of you all always xxx
    Hayley @hayleyfromhome recently posted…Playgroup With ThreeMy Profile

  • Reply
    jenna
    January 13, 2015 at 1:46 pm

    I’m so sorry to hear you are going through such a distressing situation. Your husband, is indeed, a fighter though and he will get through this. Thinking of you and your family and hoping you get that positive news very soon.

    xxx
    jenna recently posted…Easy Homemade Dog BiscuitsMy Profile

  • Reply
    Californian Mum in London
    January 13, 2015 at 2:02 pm

    I am so sorry hun. It sounds so stressful. Luckily you have family there to help with the kids while you can be there for your husband. You’re all in my thoughts!
    Californian Mum in London recently posted…The Clean-Eating KitchenMy Profile

  • Reply
    Imogen
    January 13, 2015 at 2:04 pm

    Massive love to you all. Come on Rog, fight a bit more. And Jules, just keep on being brave a bit more. Dig deep my darling xxxxxxxxxx My thoughts are with you all the time.

  • Reply
    everything mummy
    January 13, 2015 at 2:12 pm

    My thoughts are with you and your family at this awful time I hope you get that positive news soon keep positive he’s a fighter xxxx
    everything mummy recently posted…Aveeno skin care reviewMy Profile

  • Reply
    Leigh - Headspace Perspective
    January 13, 2015 at 2:14 pm

    I’m so sorry to read this news. Wishing your husband a speedy recovery. Love to you all xxx
    Leigh – Headspace Perspective recently posted…When everyone but you is having babiesMy Profile

  • Reply
    Sarah christie
    January 13, 2015 at 4:01 pm

    Ah Julia, I am so sorry you are all going through all of this, and hope good news comes soon xx
    Sarah christie recently posted…Tips and Advice to my 18 Year Old SelfMy Profile

  • Reply
    katy (what katy said)
    January 13, 2015 at 4:42 pm

    Fight fight fight! Your love will pull him through x
    katy (what katy said) recently posted…A Simple Game of ChaseMy Profile

  • Reply
    My Life As A Mummy
    January 13, 2015 at 7:33 pm

    I am really sorry to hear about what you are all going through! Sending you lots of virtual hugs and I hope Rog makes a speedy recovery!

    Lots of love

    Laura x x x
    My Life As A Mummy recently posted…Dear LucasMy Profile

  • Reply
    Rachel
    January 13, 2015 at 9:14 pm

    so sorry to hear this 🙁 Thinking of you, stay strong like you did the last time. Come on Roger, fight it, get well soon xx
    Rachel recently posted…Growing up but not quite grown upMy Profile

  • Reply
    Katie Haydock
    January 13, 2015 at 11:00 pm

    Sending you all of the love in the world. Keep fighting Roger!!
    Katie Haydock recently posted…That time that I was sick in the sink… and other highlights of 2014My Profile

  • Reply
    Natalie
    January 14, 2015 at 9:33 am

    I am so sorry, really thinking of
    You guys xx

  • Reply
    Rob Liddle
    January 14, 2015 at 10:38 am

    All my best wishes to you and Roger
    x

  • Reply
    Carrie
    January 14, 2015 at 4:35 pm

    Thinking of you and your family, sending lots of love your way xxx

  • Reply
    Waking up - Rainbeaubelle
    January 16, 2015 at 9:35 am

    […] writing about all this on Monday, I’ve been overwhelmed by all the messages I’ve had not just from family and […]

  • Reply
    Gemma Murphy
    February 17, 2015 at 11:15 am

    Didn’t want to read and run, I hope you get some positive news today. will be thinking of you xx

    • Reply
      Rainbeaubelle
      February 17, 2015 at 9:59 pm

      Thank you! This is actually a post from a few weeks ago but things are still pretty rough! X thanks for your comment x

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