Our world has been turned upside down again. On Saturday night, I took my husband into A&E because I was worried he’d become a bit confused and was saying some pretty random stuff. He’d been feeling poorly for about a week but nothing as out of the ordinary as this. In the few hours that we waited to see a doctor, he deteriorated so much that he was unable to answer basic questions and became extremely drowsy. A night of waiting for tests followed and by Sunday morning he was moved to the intensive care unit and put on strong intravenous antibiotics.
They suspected encephalitis, a viral infection that affects the brain. Since then, this has pretty much been ruled out but the reason it’s all happening still isn’t known. He’s had so many tests and the results keep coming back clear – all until yesterday, when an MRI scan showed something on his brain which they suspect might have something to do with a mineral deficiency. Hopefully we will know more when he’s been assessed by neurologists later today, but until then, I’m left waiting and wondering what it is and how it can be treated. I’m not sure what to feel, think or expect, and I’m just feeling really, really scared.
Thankfully I’ve got my family around me and my children don’t really know what’s going on, because one is too young and the other is enjoying spending extra time with his grandparents and hasn’t yet realised how poorly his father is. He must have asked me three times where his dad is, but fortunately keeps forgetting when I say in hospital. It’s not new to him you see, as we’ve been here before. Many of you will know that 18 months ago Roger was admitted to intensive care in an emergency and spent the following eight months in hospital being treated for blood clots, a bowel resection and liver problems. So sadly intensive care isn’t a new environment for us, but at least I’m less shell-shocked by all the machines and the bleeps, and the anxiety and the sadness that comes with it. Another plus – if there can be such a thing – is that many of the nurses remember us from last time, and know exactly what we must be going through this time around.
I’m hoping and praying I have some positive news soon. It breaks my heart to think the situation might turn out anything other than good. We’ve been here before and we got through it. Turns out my husband is a fighter. So come on Rog, fight! We all love you so much x x x x
26 Comments
Clare
January 13, 2015 at 11:04 amSending so much love and light your way Jules. You’re right, he IS a fighter. We are all willing a speedy recovery xxxxxx
Megan - Truly Madly Kids
January 13, 2015 at 11:07 amAbsolutely fight Rog! You will be in my thoughts – lots of love xxxxx
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Lindsay @Newcastle Family Life
January 13, 2015 at 12:04 pmOh I really do hope he gets better soon. I have been in intensive care once before with my mum and it’s not a nice place at all. Fingers crossed they find out what is wrong. Thoughts and prays are with you at such a difficult time.
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Paul Cockerton
January 13, 2015 at 12:09 pmCan’t think of what to say other than to wish you all the best. Sounds like you’re doing an amazing job keeping it all together. Best wishes to you all.
Mini Travellers
January 13, 2015 at 12:09 pmOh lovely, fight fight fight Roger. Sending lots and lots of love your way. xxx
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Mrs H
January 13, 2015 at 12:31 pmMy darling, Julia. I really wish you weren’t going through all this again. My thoughts are with your family at the moment. Rog – you better fight for your gorgeous wife and children. We love you. We hope to hear that Rog is back at home where he belongs soon. Hugs Lucy xxx
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mummyofboygirltwins
January 13, 2015 at 12:34 pmReally am so sorry you’re going through all this again π Your poor family has been through enough. I really am hoping for good news and thinking of you every day. You need anything at all and you just let us know. Big hugs – Jess x x x
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Kat | Beau Twins
January 13, 2015 at 12:41 pmCome on Rog, you have to pull through. You have an amazing wife and wonderful children. Sending you so much love and strength Julia. Xxxxx
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Deb Troops
January 13, 2015 at 1:03 pmJules I’m with you love. Can I offer a suggestion there are several conditions that can cause these symptoms and they’re all to do with the Endocrine system IE Pituitary and Hypothalmus usually affected by brain injury but can relate to infections of organs in the body that filter waste eg Liver and Kidneys. I only know because Josh has huge problems as a result of his brain injury and now he’s on steroids things are going well. Roger is a fighter you will get through this and if there’s anything at all I can help you with please don’t hesitate to ask. Claire has my number. Love and prayers x
Hayley @hayleyfromhome
January 13, 2015 at 1:04 pmOh Julia it makes me so sad to think of you going for all this again! You are so strong and I know Rog will keep on fighting too, I hope you get some answers soon. Thinking of you all always xxx
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jenna
January 13, 2015 at 1:46 pmI’m so sorry to hear you are going through such a distressing situation. Your husband, is indeed, a fighter though and he will get through this. Thinking of you and your family and hoping you get that positive news very soon.
xxx
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Californian Mum in London
January 13, 2015 at 2:02 pmI am so sorry hun. It sounds so stressful. Luckily you have family there to help with the kids while you can be there for your husband. You’re all in my thoughts!
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Imogen
January 13, 2015 at 2:04 pmMassive love to you all. Come on Rog, fight a bit more. And Jules, just keep on being brave a bit more. Dig deep my darling xxxxxxxxxx My thoughts are with you all the time.
everything mummy
January 13, 2015 at 2:12 pmMy thoughts are with you and your family at this awful time I hope you get that positive news soon keep positive he’s a fighter xxxx
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Leigh - Headspace Perspective
January 13, 2015 at 2:14 pmI’m so sorry to read this news. Wishing your husband a speedy recovery. Love to you all xxx
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Sarah christie
January 13, 2015 at 4:01 pmAh Julia, I am so sorry you are all going through all of this, and hope good news comes soon xx
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katy (what katy said)
January 13, 2015 at 4:42 pmFight fight fight! Your love will pull him through x
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My Life As A Mummy
January 13, 2015 at 7:33 pmI am really sorry to hear about what you are all going through! Sending you lots of virtual hugs and I hope Rog makes a speedy recovery!
Lots of love
Laura x x x
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Rachel
January 13, 2015 at 9:14 pmso sorry to hear this π Thinking of you, stay strong like you did the last time. Come on Roger, fight it, get well soon xx
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Katie Haydock
January 13, 2015 at 11:00 pmSending you all of the love in the world. Keep fighting Roger!!
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Natalie
January 14, 2015 at 9:33 amI am so sorry, really thinking of
You guys xx
Rob Liddle
January 14, 2015 at 10:38 amAll my best wishes to you and Roger
x
Carrie
January 14, 2015 at 4:35 pmThinking of you and your family, sending lots of love your way xxx
Waking up - Rainbeaubelle
January 16, 2015 at 9:35 am[…] writing about all this on Monday, I’ve been overwhelmed by all the messages I’ve had not just from family and […]
Gemma Murphy
February 17, 2015 at 11:15 amDidn’t want to read and run, I hope you get some positive news today. will be thinking of you xx
Rainbeaubelle
February 17, 2015 at 9:59 pmThank you! This is actually a post from a few weeks ago but things are still pretty rough! X thanks for your comment x